SAHM Life

The life of [this] SAHM: take care of baby. Clean. Attempt (and fail) to maintain order with the teens, clean some more, take care of baby, cook, clean, take care of baby, pass out before cleaning is done (because baby doesn’t nap), repeat, daily.

Do I want to spend time with my husband? Sure… we sleep next to each other. Does that count?

Do I want to watch a TV show or movie? Sure… I read captions when I’m able to look up at the TV, and half listen to the rest through crying, talking, loud toys, gaming, and YouTube videos on cell phones.

Do I want to have a relaxing shower? Yeah… I get 5 minutes while the baby plays on the floor or while my husband is getting ready for work in the morning. Or in the middle of the night if I want to sacrifice sleep.

Do I want to eat a meal? Well yeah… I quickly shovel in whatever is baby safe for sharing while the baby is also eating, or while he’s playing or asleep for the night.

Do I want to have a date night? Hell yes…. perhaps when the baby is old enough to have a sleepover with a school friend (in years).

This is my station in life.

Some days I wonder where I am in all of this. When do I get to fulfill some dreams or do what I want? But… I adore my family. I love my husband. I love my kids. And I wouldn’t trade them for the world.

Felix is 10 Months Old!

Felix is 10 months old today. He is so happy these days, and is a delight to spend our days with.

We are doing better with routines now, and I think that has helped him understand when bedtime is. Sleeping remains a struggle, and naps are nearly nonexistent, but we’re going to continue to work on it.

The developmental specialist said we should try to re-introduce dairy into Felix‘s diet, and so far it’s going well in small quantities. He is eating a pretty wide variety of foods now, and is finally starting to try and feed himself.

He is not crawling yet, though he is getting closer every day. His physical therapist reduced his visits to every other week rather than every week because he’s making such wonderful progress. She said she anticipates him being caught up with his peers by age 2. We are just all so happy that he is getting caught up, and that he has passed his fussy first several months.

I can’t believe we are nearing one year old! Onward and upward!

Step 1

Felix had his developmental specialist appointment. Dr Noble examined him, talked about our concerns, and was very attentive and professional. He did express some concerns about Felix, but in a rather non-specific way. He diagnosed him with hypotonia, but said his muscle tone was good, saying he thought he would really benefit from physical therapy, occupational therapy, and speech therapy (for feeding concerns, at his age). He wants to be really aggressive with therapy in hopes that we can come out ahead of it.

Dr Noble also referred Felix to neurology, gastroenterology, optometry, audiology, and ordered genetic tests, an upper GI, and a sedated brain MRI. It’s a lot to take in all at once. And I have no idea what the doctor is thinking may be the overall issue, but he said he has to rule a lot of things out before we will know what it IS.

Jarrod really has been my rock through all of this. He worries, but nothing like I do. He has a more “take it as it comes” attitude, which is good for me. I tend to sit and stew, and wonder about Felix’s every little new behavior. I’m so anxious about test results or what the future may hold for our boy. I truly just want the best for him. I’m so scared he’s going to have big challenges and… well my mind tends to wander to worst case scenario. I hate that about myself. I just want to shut off that part of my brain and focus more on Felix’s strengths. I’m working on it.

Almost kinda sitting up. 🙂

The first tests Felix was able to get done were a few basic blood tests and an upper GI. All of those have come back normal so far except for some reflux seen in the upper GI. But that has already been being treated, so nothing new there. His next test is the sedated MRI of his brain. I’m more nervous about that just because he has to be asleep for it, and I’m a little worried about what they may find. I know during his many ultrasounds while I was still pregnant, they always looked at his brain and organs and they were always perfect. So I guess we will see if anything has changed.

We are also waiting on results of blood and cheek swab genetic tests. But those take several weeks.

There’s so much going on so quickly, and it’s overwhelming. But I feel very grateful to have doctors taking things seriously and getting him figured out while he’s very young so he can have the best possible outcome and future.

I’ll continue to update here as test results come back to us.

Felix is 6 Months Old!

Felix is six months old! He had his six month check up today, and updated his vaccines. He was running a little behind on vaccines because for his four month check up he was fighting quite the virus. It turns out he had CMV. If you don’t know what CMV is, I very strongly suggest that you research it. I knew nothing about it before Felix was diagnosed as having had it. I believe he contracted it after he was born rather than in utero, so we have that working in our favor. However, since the symptoms last so long, his development is delayed a bit. That would be why he wasn’t meeting his milestones or doing much of anything for a couple of months earlier in his life.

However, as of today, the doctor and nurse both are not concerned with the way Felix behaves or appears in the doctor’s office. The nurse has been doing her job for well over 20 years, and said Felix seems like a pretty average six month old baby now. As of today, Felix is 16 lbs. 10 oz., and 26 1/2 inches long. He is in the 30th-40th percentile for baby boys of his age. It seems odd to me that he is so small on the percentile chart now, when he was so huge when he was born. But he’s been growing on that path all along, so that is clearly the size he was meant to be. There is no concern there.

Developmentally, when it comes to his milestones, he is a little behind still. I truly believe it was because he was feeling crummy for so long, however he does still have an AEA evaluation and developmental specialist evaluation next week. We want to cover all of our bases so that if there is an issue, we can address it early so Felix has the best chance at having a typical childhood.

As of yesterday, Felix started rolling front to back a little, and understands how to roll back to front with help. When he gets put into a bouncer seat, he scoots his butt forward until his feet touch the ground, and then he scoots out of it. He sits up without support for a few moments at a time, but likes to throw himself backwards so we have to be careful. He still isn’t good about eye contact, but he is looking at things and tracking movements much better. and he absolutely loves playing around with our new piano. I swear he’s going to be a piano star when he gets older. Lol. Other things he likes are going swimming, taking baths, and most of all, the porch smoking. When he is having a bad day, and is the most upset, we can sit on the porch swing together and he’s happy for the time we’re there. He has also started solids, and really loves meal times. He is still breast-fed for the rest of the time.

Overall Felix is a pretty happy, good spirited young man. But when he’s having a bad day, everyone knows it, and there’s not a whole lot we can do to get him past it besides just get through the day. I’m hoping with time, the bad days are fewer and further between, filled in by many more happy days. He is such a joy to be around when he is in a good mood.

School Is Out

It’s officially summer for the kiddos!

Andy just finished his junior year in high school. He’s been messing around so much that he is not on track for graduation with his class, so he starts credit recovery with the start of his senior year. He can either go to the alternative high school to finish up, or he can take extra online classes in addition to his full classload. But he must pass everything. He’s fully capable of passing, even with exceptional grades. He’s just not willing to put in the work. I’ve been having conversations with him about it quite a bit, and I’m hoping at least some of it is sinking in. Also, I’m requiring him to get a job this summer. He’s 17, and it’s time for him to start preparing for adulthood. I can’t believe I have a baby who is nearly an adult!

Evan spent most of his school year at Orchard Place, where he refused to do much school work at all. When he came home he did very, very well for about a month, until I expressed how proud I was of him. Then he stopped doing work and eventually got expelled for the remainder of the year with the option of finishing online. He didn’t take that option, so he will now be required to repeat his freshman year. It’s really too bad because he proved he’s capable of getting As and Bs. He just refuses to do it, for whatever reason. It may be a part of his mental illness. Or it may just be defiant adolescence. Or both. But I sure hope he can pull himself out of it.

Cory finished his 7th grade year! He was trailing behind on a couple of classes until the day before the last day. He and I sat down and I told him (for the millionth time) that he is nearly 14, not 6, and he needs to start being responsible for himself. And that the only one he’s hurting by not doing his work is himself, and he was about to have to repeat 7th grade. He pouted for over an hour, then got some work done that night. The next and final day at school he was able to find the motivation to get caught up.

Zoey, Autumn and Willow all did much better than the boys, as they don’t avoid their schoolwork, and are all moving onto the next grade.

The boys definitely had a lot of struggles with school this year, but we made it through. Here’s hoping next year isn’t quite the struggle for them… and congrats to the girls for doing well!