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⚠️ Trigger Warning ⚠️ Suicidal Thoughts, PPD

“You’re so strong, such a good mom. God won’t give you more than you can handle. Your baby’s got challenges but you’ve got this! ”

Things I hear or have heard regularly. All fine, with good intentions. But you know what? All I’ve ever wanted was help. All I’ve ever wanted was someone to say “I see you struggling. Let me help.” I’m not asking for the world. I mean small things, like bringing a meal when I was so tired from late nights that I couldn’t find the energy to cook. Coming over and holding my colicky baby and pacing with him for an hour so I could have a break from the screaming and regroup. Any little thing. Even a visit and a hug.

Did I get any of that? No. During his first year of life I not only adjusted to being a new mom again, but I also dealt with TEN MONTHS of incessant crying. As time passed it became more apparent he had special needs, and I mourned my way of life, and any plans big or small we had for him. I became sure I should give him up to more suitable parents, and I even became suicidal because I felt worthless because I couldn’t make him feel better. I felt I was failing as a mother. I was in probly one of the worst mental states of my life. I truly wanted to die.

Felix crying into my shirt around 3-4 months old. Nearly nothing helped soothe him. It would go on for many hours at a time.

Not one person noticed. Not one person reached out. I tried to express myself, but my husband was working very hard to support our “new normal,” and my friends and family vacated. Some of my cries for help were met with jokes. Some of them were met with “oh it will be ok.” And most of them were ignored entirely.

Still today, not one person outside of me and my husband has made any effort to get to know Felix in a way that they could care for him. We haven’t had a real date night in nearly 3 years. Our marriage has been through the ringer because of this. It’s a miracle we’ve made it this far.

And God? I don’t believe in God. If you want to tell me this was all given to me as some sort of sick experiment planned by an invisible man in the sky, please just keep that to yourself.

The fact is, this isn’t fair. Felix didn’t deserve to have all these troubles. He didn’t deserve to be unable to walk, talk, eat properly, process speech or emotions or his senses the way he should be able to… when he will be 3 in a couple months. He didn’t deserve to have belly and sensory issues so severe in his first year that all he could do is scream frantically trying to tell us something was wrong, with no relief. He didn’t deserve to have a mom who was utterly alone and often frustrated and ready to give up on life because she couldn’t help his helpless little hurting soul. He didn’t deserve any of it.

For nearly a year, wrapping Felix tight up against me was one of the only ways to get the crying to stop. I couldn’t sit or relax, I had to stay in motion. I was TIRED.

All I’ve ever wanted as a mom is for my kids to have FAMILY, and to be happy and healthy and to know they are loved, and to have every opportunity to thrive. And though I’ve done the best I can do on my own, I still can’t help but feel I’ve failed left and right.

And I’m still mostly alone. My husband is not working as much now, and it’s amazing to have his help as I expected to have before. I absolutely love the relationship he and Felix have. But again, still no one else stepped up. It’s just me, him and Felix. No one noticed. No one cared.

But we made it. I adapted. I’m no longer suicidal. I’m no longer sad or upset. I adore Felix. I just learned I can’t depend on anyone to help ME when I need it, especially when I need it most. I’m actually looking into hiring skilled respite care for date nights and much-needed breaks when I become overwhelmed. That way I can reduce my own stress levels to be the best mom I can for Felix. Hopefully we can find the right person, or people, that can see and understand what Felix is all about, and who can build a good relationship with him for their visits. He needs a good team. They can be our extended family, in a way.

Felix playing with his dads phone after lunch, while eating out. And me, peeking around him. Lol. Just for fun. Life is better now. 💖

Snapshot Of Our Lives

Life is ever-changing. Tastes change, circumstances change, people grow and change. I know where I am now, and what I do on a daily basis is far different today than it was a year ago. Or the year before that. So I’m going to make this post once or twice per year. This is a snapshot of what my life looks like today.

Today Felix woke me around 10:30am, which has gotten earlier over the past couple weeks. He was sleeping in until noon. He cuddles me for a few minutes before he goes to play, a morning tradition I cherish. He and I woke Jarrod, and then Felix played for a while while Jarrod and I checked our phone notifications.

Felix and Scout, just starting the day.

Then Jarrod cooked some eggs for the three of us, and I got our drinks. Today we had cold cereal with our eggs, other days we have toast with peanut butter, bacon, or oatmeal. While we have breakfast we watch something on the iPad. News, game shows, reality shows, or sitcoms. Today it was Big Bang Theory. Once we were done eating, around 11:45am, Jarrod left for work. He works noon til 9:00pm right now.

Today we had no appointments. So we didn’t have much to do. I took a shower while Cory hung out in the living room with Felix. Felix played with his toys in the living room and rode his horsey all over the house. Cory played on my computer for a while and had a show playing on the TV. I chatted with him and cruised social media. I also did some light cleaning, and watched our kittens play. Around 3, Felix crawled up into my lap and passed out for a nap. He naps on me, Jarrod or Cory when he naps. Typically he sleeps for about 30 minutes, but today it was about an hour and a half.

Sleepy boy!

Other days Felix may have a checkup or therapy, we may have friends to hang out with, or shopping to do. Sometimes my mom or Jarrod’s will visit, Evan or one of the girls will hang out for a while, or we will go out to eat. If Jarrod has a day off we usually find something to do outside of the house.

Once Felix woke up from his nap, I fed him lunch. After lunch he watched a couple episodes of the cartoons Pablo and Simon on Netflix while I placed an order online at Walmart for pickup, like I do a couple times per week. As of right now, COVID and RSV are quite common amongst children, and though everyone else in the house is vaccinated against COVID, I’m doing my part to protect Felix by reducing my contact with the public. So currently (again) I’m not taking him into stores much. So our trips to the store for pickup are regular outings as well.

When we got back from the store we had a snack, and I put on some music on YouTube for Felix. He LOVES Billy Strings, so I just put some videos on and he will watch and dance. That has bought me a little time to write this blog post. Even though Andy just decided to emerge from his room for the first time since I’ve been awake today. Nevertheless, I’m continuing to write because I’ve already had too many distractions over the last couple days. Once I’m done, I’ll get supper started.

Felix on his horsey, Billy Strings videos playing.

We will eat late, once Jarrod gets home from work. Usually around 9:30-10pm. He will take a shower before he eats, and bathe Felix once supper is over. That’s their bonding time, since he’s gone for most of Felix’s waking hours. While that’s going on, I’ll get the kitchen cleaned up, and maybe tidy up a few other things. Lately I’ve been playing a lot of Sims 4 in the evenings before bed. Jarrod will have Friends or some other sitcom playing on the TV and will play with Felix or look at his phone if Felix is busy playing. We will talk about the day and update each other on anything important or entertaining that happened, or anything coming up either of us should be aware of.

Felix is usually ready to sleep around 12:30-ish. So we will head to the bedroom, read Felix a couple stories, and he and I will brush our teeth. And then we will get into bed. I hold Felix until he falls asleep, and then lay him down on his mattress, which is right up against ours. Jarrod and I both stay in bed at that point too. And the day is over.

The therapies Felix has are Physical Therapy, Occupational Therapy, and Speech Therapy. He currently has referrals to get his vision and hearing checked again, and has an upcoming appointment with the Developmental Specialist, and Genetics.

Today was a mellow, rather boring day. Not all days are like today. In fact, often we have so much to do that we’re all exhausted by the end of the day. But right now, I love where we are. I love how Felix is my best friend, and is so much fun to play with and go to appointments with. He enjoys therapy and all of our outings. There are times I feel overwhelmed by my lack of alone time, but then I just take a step back and remember these days won’t last forever. In fact, these days will be short and sweet, and someday not too far into the future I will miss my little boy and our fun times together.

Not today, but adorable anyway. 💕

This is a snapshot of now. I know things will change so much, so it will be nice to have this post as a little reminder of today.